Letter of September 1st 1998
from Jacques Gaillot


 



Euthanasia


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Euthanasia


I don't like this word, nor do I like the distinction between"passive" and "active" euthanasia, nor yet the expression "palliative care". But the reality exists: how are we to manage the end of our lives and die with dignity ? This issue was already being debated, but it has been given a new impetus by the formal interrogation of a nurse who had helped about thirty of her patients to die.
 
I went to visit an old lady in hospital, who said to me : "I'm not afraid of death; I long for it. But what I don't accept is the suffering. I had no idea one could suffer so much".
 
How is it that nowadays, in a large hospital, it is so difficult to ease the pain the patients are suffering? Is it that the mighty doctors, who have been trained to cure, cannot bring themselves to prepare people for death. We go on treating the malady to the utmost, without taking the end of life into account.
 
On another occasion, I went to see a young man who was very seriously ill. "All the nursing staff are very kind and competent", he told me, "but they are always in a hurry and we only ever talk about the treatment. I should like to talk to them about other things, but I sense that it is not possible. The other day, I felt so alone, and I was longing for the nurse just to put her hand on my forehead".
 
The loneliness of the sick! Non-existent dialogue! And yet it is the sick who are facing the basic questions of life and death.
 
In hospitals, death has become very 'medicalized'. Often it escapes even the patients themselves. Surely the right to die with dignity means making time and space for each individual at the end of their lives? Means, too, taking on the burden of their pain by keeping them company day by day in order to ease their sense of isolation and help them to confront the major event of death and so enable them to live it with dignity ?
 
To administer drugs that will cause death does not seem to me to be the way to respect the dignity of those who are ill. To do everything we can to alleviate their suffering and keep them company right to the end, that, surely, is to die with dignity ?







Jacques Gaillot




 





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